If Pokemon were medical conditions I would have captured them all… or so it seems. Yes, even those ‘rare’ captures belong to me.
I have Lupus, Interstitial Cystitis, Fibromyalgia, Chronic Fatigue, Joint Hypermobility Syndrome, Bulging Discs, Sciatica, Hip Impingement with Labral Tears, a Hiatus Hernia, I’m a Thalassaemia Carrier and I am also Anaemic. My circumstances are both genetic and environmental. Forrest Gump was right when he said ‘life is like a box of chocolates, you never know what one you gunna get!’ Because Endometriosis is a whole new chocolate they’re hoping to find in my selection box. I think it’s about time I complained to the manufactures because I ain’t enjoying the bitter chocolates I’ve selected so far…
8 hours ago I was sitting opposite my Gynaecologist who told me he’s almost certain I have Endometriosis. He told me he will perform surgery in 4 weeks time to put the diagnosis on paper and try to tackle what’s going on inside the ‘Chronicles of Nadia.’ I will be having an Laparoscopy to start with, placing a camera through my belly button into my tummy, where 2 incisions will be made on my bikini line so that they can get through to destroy or remove any endometriotic tissue. Because I like to be different, they will also be going through my urethra to see it there is tissue growing on my bladder as they believe it’s likely due to my symptoms. They may consider looking at my bowel if they see fit. All of this will be performed under a general anaesthetic… a not so fun induced loss of consciousness, but hey what did I expect, I gave up alcohol remember, duhhhh! I get my kicks from drips and morphine now.
I couldn’t help but wonder as I was laying there being examined (with zero dignity and zero cares), is there any link between Lupus and Endometriosis? Well…
Research from the National Institute of Child Health and Human Development (NICHHD) of the National Institutes of Health (NIH) revealed that endometriosis patients are at increased risk to suffering from Lupus chronic fatigue syndrome, multiple sclerosis, underactive thyroid, and rheumatoid arthritis, compared to healthy women.
So I guess it’s more of a ‘What came first, the chicken or the egg?’ kinda question. I feel really sorry for the naive 15 year old girl that knew no better than to accept the negligent care at her old GP practice. Being put on the pill DID NOT treat the problem, it’s just hidden it for all these years until my body screamed no more!!!
My Gynaecologist asked me if I wanted to have children, something that I’ve already been concerned about since my Lupus Consultant informed me that I couldn’t try and get pregnant until I was in remission due to the risks involved. I know that Lupus may some what pose obstacles to pregnancy. I know that years ago Lupus patients were strongly advised against it. Now that they are looking into Endometriosis I understand that this may decrease my chances some what more. I genuinely explained to my Gynaecologist that I would have to be at least 30 years old before I considered having a baby regardless of my health conditions.
For those of you who know me, it won’t come as a shock to you that I’m not the most maternal. Maybe that’s just my age or maybe that’s just me. I know that everyone is different, everyone has different views on life, different hopes and different dreams. But I won’t apologise for wanting to live my life before having a lifelong commitment and responsibility. I’ve had to give up my late teens and early 20s to Lupus and other health related issues. I feel like I deserve to live my life and see the world before I live it for someone else.
I’ve spent the last 10 years in and out of hospital, for procedures, operations, scans, blood tests, treatments so…
I’m just saying that for ONCE let’s prioritise the actual patients well being before focusing on future individuals!!! Let’s investigate what is wrong with ME and let’s try and fix it best we can, until cures are found.
I have to be open minded, he could come back after surgery and tell me he got it wrong, ‘leading Gynaecologist in Europe’ or not. The body is a complex thing and so is the autoimmune disease Lupus I am dealing with.
All I know is that not everything happens for a reason, sometimes we just get unlucky and the cards we are dealt seem unfair. But that’s just life unfortunately. We just have to dust ourselves off and pick ourselves up. We have to enjoy our life to the fullest way we can, with those we love.
I will keep you updated on my journey xoxoxox
Please see picture below for Endometriosis symptoms ….
JUST JOKING… please follow the link: Endometriosis